Tuesday, September 15, 2009

Day 73

I am finally done with all the work I have to do in Wichita. I feel really good about going to UT in the morning. I will miss John terribly but we both know this is where I belong at this time of our lives.

So much going on with Nicole today. Good and not so good. PT went better today it seems. She walked some and had no complications with her breathing. I was happy to hear that. Wound care went well although her infections are not improving nor is her back healing as well as they want it to. The nurse told me they are trying some other product. It looks to me like they have tried many products. I hope they don't run out of things to try before she is healed.

More blood today. I think we are up to about 110 blood transfusions. An to think I thought 5 was a lot.

Nicole's eye have been looking quite yellow the past several days. I brought it to Dr. Shen's attention but he didn't seem to think that there was anything to worry about. Today Nicole's nurse brought it up to Dr. Morris as well as her urine is so dark and so Dr. Morris wants to have some tests done to see why. I am grateful to Nicole's nurses who seem to be on her side.

Dr. Morris said today Nicole is still critical. He did upgrade her from 50/50 to 60/40. Well that is a bright spot.

Nicole is disoriented again today. When I tried to talked to her shew as slurring her words so much that I couldn't understand a word she was saying. She didn't remember who her nurse was and kept calling him wrong name.

I will be glad to get there tomorrow. I know they are capable but there is nothing like a parent advocating for their child.

Tonight John and I are going out to dinner with friends. It will ba great to talk and have fun with them. Then a quite last night at home with John. Gosh, I love him. he is my strength, my rock, my go to guy.


Sandra McMillin said...

You and John are a good team, I'm glad you've got each other to lean on. You are so amazing to me, I wish I could be half the person you are. Your entries make my trials seem so small, they help me each day with raising 2 teenagers. Hang in there and know we are rooting for you and Nicole. Big big hugs! ~Sandra

granny said...

Love you Angi! There aren't words to express my sorrow and deep concern. Just know this: God is your refuge...not one living soul! Let Him breathe and live in you now to the fullest extent possible!