Do you ever wonder if all you are doing will make a difference? And if it does will it be good enough? I hope I am making a different in this world. So many times I look around and I get ideas that would make someones life better. I want to take the opportunity to implement those ideas.
I find myself writing lists of ideas. I am a list girl at heart. Nothing like the satisfaction of checking it off. One day my ideas list will be all checked off and I will see the fruit that comes from it.
Christian was fitted with a King of Heart today. He will wear it about 2 weeks. It monitors his heart and sends the information electronically to the monitoring station. Hopefully this will give us more information that will lead to something positive. He and I went to dinner tonight and had a great talk. He is so easy to talk to. I love it when he is so animated.
Earlier in the day he called me and told me he got a text from his dentist office that they were giving away tickets to a private showing of 'NEW MOON'! Oh my gosh. Really?! Anyway he was able to secure some tickets and we are going on Saturday. Well fro sure he is going. I will see how Nicole is getting along and if I can have someone stay with her. (Ashley?) But if not, I know he will have a great time.
I feel the last few days at the unit have been the same. Learning wound care. But today I was able to go with Nicole to PT and learn several stretches and activities that will help her once she comes home. Tomorrow I will learn different ones. They are very painful but I just keep saying to myself, "No pain, no gain". I know Nicole isn't ready for me to say that to her.
PT is going to measure Nicole for a shirt tomorrow and hopefully her pants. It takes about 2 weeks to get them in. They will also scan her for a mask that she will start wearing at night and as she gets more comfortable she will wear it in the day for a few hours.
PT blindsided me today. Nicole's insurance doesn't pay for her pressure garments. I don't really get that since it is such an basic yet vital part of recovery. They told me she needs at least 2 sets and ideally 3-4. And they wear out so it would be 2 sets now and 2 sets in several months, maybe 2 sets again before she won't need to wear them any longer. She will be wearing them for at least 2 years. They are washable but you can't dry them. They have to be laid out to air dry which takes many hours.
Each set $1800 if she doesn't need zippers. Each zipper $150. I think I am in the wrong business. How can a pair of pants, a shirt and a pair of gloves cost that much? How can the average person pay that much?
I cried all the way home from the hospital praying for a way to be able to accomplish this new trial set before us. I don't have an answer yet but I do know God was listening. I know He will provide a way. I felt so distraught as I left the hospital but by the time I got home I felt loving arms, knowing arms. Arms that have comforted me before, arms that feel familiar.